Lat week, my wife Patti and I spent the week in downtown Chicago. I was involved in some daily tests regarding my movements for about 3 hours each day for the five days. A grant to Northwestern Human Movement Department enabled them to do some daily testing and all our expenses were paid. This includes limo pickups on Monday and Friday, all meals and snacks, hotel and all cab rides. What a blessing to see where God has led us. We could have not planned any other way. To believe I wrote a book about my experiences with Parkinson’s is God using us and our willingness (most of the time) to remain strong in our faith. My book is “When Life Gets Shaky”. What is interesting, I usually sell two at a time. One is purchased to give to a friend who is struggling with Parkinson’s and a second book is purchased to learn more about this disease.
I was diagnosed with Parkinson’s back in 2004. Our faith was set back for a short time since we did not even know what this disease was or the impact on my future. The diagnosis of Parkinson’s disease was a whole new challenge for us. Many of the health issues Patti and I have already worked through have better known names somewhat familiar to us. Parkinson’s, however, was different. There are so many variations of Parkinson’s with each person presenting different symptoms. The most common symptoms include shaking/ movement issues, balance/ strength issues and mental/ memory issues. Those living with Parkinson’s may deal with one set or a combination of issues. For example, some friends have mental issues with no shaking, while some have mental and strength issues with no shaking. Although this disease can be somewhat managed, researchers are still looking for a cure and they are far from understanding it. All I knew at first was parts of my body were shaking off and on uncontrollably and my movements were slow. I did not know why it was happening.
in 2005, I tried not to show my shaking in public. Eventually, I realized God wanted me to share my condition. I found everyone already noticed something was up with me. If you are in a similar challenge or struggle, I encourage you to share with others to get valuable encouragement and prayer support, as those around you already see something is going on. Through my sharing I was able to get in touch with others who have the disease to learn more about it. Deep Brain Stimulation (DBS) surgery changed my life. God has used me to support and encourage others. Thank you for all your prayers in support of Patti and I. “And we know that in all things God works for the good of those who love Him, who have been called according to His purpose”. Romans 8:28 NIV HIs plan, His way and His timing.
Back to our week in Chicago, Patti was on vacation, as I still had to do some testing for about 3 hours per day during the week. We were able to take an Architectural boat tour on the Chicago River. Bummer, the grant would not cover any entertainment. May God bless you and encourage you.
See my website for past blogs.